Tuesday, December 28, 2010
Sunday, December 19, 2010
Wednesday, December 15, 2010
Friday, December 3, 2010
Wednesday, December 1, 2010
Today is the anniversary of Rosa Parks staying in her seat.
It's also the first day of Hanukkah....
And!!
It's the day they found a donor for Laura!!!
Her donor is a 10 out of 10 match!
(Didn't I ask y'all to pray for a perfect match?!)
Thank you, Mr. or Ms. Donor, for your gift to our family.
Love,
Everyone who loves Laura.
Thursday, November 25, 2010
Laura spent the day in Atlanta and had Thanksgiving dinner at our cousin, Rene's house...
Afterwards, she, Clif and Emily hung out at Mary's house with Mary's family.
They had a good day.
Though I was happy to spend Thanksgiving with Harv, the girls and my in-laws, I would've loved to have been a part of that photo!
Thankful for so many things!
Love y'all!
Wednesday, November 24, 2010
GFW!!!!
GoFightWin!
We are all GIVING THANKS for all of you.
Monday, November 22, 2010
"He will take up your cause. He will remove your spirit of fear and replace it with a spirit of courage and peace. Look forward to your future with confidence. He has gone before us, He stands behind us, and He is with us...all at once." --Kristin Armstrong
Sunday, November 21, 2010
Today's post is a speech written and given by Eve Ensler on Tuesday, October 26 at The Women's Conference in Long Beach, CA.
**************************************
The Gift of Cancer
It happens like this
The doctor walks towards me
His face is ashen
He says we have found something
It does not look good
There is a trap door in the seat of the waiting room
And I am falling
And as I fall I hear
The echo of him saying
Cat scan
As big as a mango
We can't be sure
This falling goes on for days
Even though I appear to be walking
And giving speeches and riding on airplanes
I am falling
As the new doctor at the new hospital
says it
says CANCER
As I wait to hear where it's coming from
And where it's gone
As I get pricked and probed and punctured
I am falling
As they first say it is not in my liver
And then later they can't be sure
Falling
Until they drug me and wheel me off
For nine hours
And when I wake up
I am in a new country
Nothing is familiar
Because the possibility of not dying
Is gone
Because I am now living in the land of the sick
Turns out my being a vegetarian-sober-nonsmoker-activist has not protected me at all
The surgeon tells me he has done 1,000 operations and he has never seen anything like it
Then he uses the word fistula
And uterus
First thing I think of course is
Congo
I knew from the first time I went to Panzi hospital in Bukavu
I stood in the place that felt like an open barn
In the place where 200 women sat on benches
Their wounded heads
Their canes
Their sweat
The strong smell of pee and shit from their fistulae
From the holes their rapist pierced into their bodies, tearing them apart
I knew from that first moment
When I looked into their faces
And saw the crimes of this century burning in their eyes
500,000 raped women
500,000 vaginas violated
500,000 bodies massacred
500,000 wombs destroyed
I had no way to protect myself
From the hugeness of the atrocity
From the insanity of this disgrace
It rolled over me like a tsunami of pain and took me
Took me took me
I have never come back
And I never will
And I knew those women now owned me
Have me
There is no other place I could ever be
No other fight that is not this fight
It's in your uterus
The tumor of rape
That is wild across the world
The tumor of rape
That exchanges women's bodies for the price of a cell phone
Or gold or diamonds
Or anything that can be extracted and stolen from their land
The tumor of rape that began growing in me when I was only five and now has matured into something the size of a mango
That's what the doctor said
Which of course is the fruit of the Congo
The most delicious in the world
The women of Congo are in my body
First gift I realize -- I am not alone
I have imagined what it feels like to lose your uterus or your ovaries
And inside the emptiness of my missing womb
There is space
There is a hunger
To just be still
Cancer stopped me
From running
Striving
Trying to prove my worth
It stopped me
From apologizing for the truth
It made me stay in one place
For 6 months
It brought me back my sister
It allowed me to commune with my friends
It forced me to take in love
And be cared for, which made me human
It took away the privilege of the well
And made me a patient
It taught me a new kind of pain
And now I see even more clearly the sick, the poor, the raped and the oppressed and I know we are family
And the majority
And that what divides us is illusion
Created by our refusal to feel
Maintained and manipulated by those in power
And I know I almost died and that it was only a couple of inches
And a few months that kept me here
And I now live with death as my companion
And sometimes she scares me and sometimes
she comforts me
But mainly she inspires me to be braver
And I no longer have any desire to be invincible
Because it isn't possible
Or accurate
I am vulnerable and porous
And outraged and crazy-happy and alive
And I know what care is
And what it isn't
How someone can stick you with a needle
And never see you
Or they can stick you and take the time so it doesn't hurt
And I fell in love with nurses
And I know that everything is ass-backwards
That we idolize people who steal our money and own everything, rather than those who get paid very little
To serve
And I know that chemo can be a metaphor
As well as a physical treatment
And that the poison is not meant for me
But the cancer
The perpetrators
The rapists
And it's okay to imagine them dead, mutilated and destroyed
Because we need an outlet for our rage
I know that after I was battered for years by my father and raped by him I held his badness, as if it were my own
And that the surgery finally removed it
And the chemo burned it off
And I know that no one will ever again
Convince me I am bad
Nor will I tolerate being undermined
And undone
I know that the abscess that grew around my wound
After the operation
The 16 ounces of puss
Became the contaminated Gulf of Mexico
And the catheters they shoved into me without proper medication made me scream the way the earth cries out from the drilling
I know that everything is connected
And the scar that runs the length of my torso is the markings of an earthquake
And I am there with the 3 million
Who are living in the streets of Port au Prince
And the fire that burns in me on day 3 through 6 of treatment is the fire that is burning the forests of so much of the world
Cancer made it clear
That time is short
And we must decide
If we devote ourselves to wrestling power inside the crumbling walls of patriarchy
or
If we are ready and brave enough to build the new world
And after searching for so many years to figure out what we are doing here
I finally get that we are being alive
Alive
Alive
And there must be time to linger
And time to enjoy
And time to remember
And time for nothing
And everything is precious
The Indian sari curtains glittering in late summer sun
The man petting his ugly dog in the park
The morning fog
The coconut popsicle
And I know that avoiding suffering is impossible
Stop defending against what is being done
Stop pretending you don't see the ragged man with his arm outstretched
Or hearing the cries of the earth being slaughtered
Or rationalizing the immoral war being fought in your name
Or finding ways to let famous rapists off the hook
Stop spending 900 billion dollars on unjust wars
While 30 million Americans are unemployed
Or justifying one genocide by another
Or burying your own story because you think you can't bear how much it hurts
Dying is the only way of being born
My cancer is blessedly gone now
My hair is growing back
I have a scar
A warrior track that runs down
My 57-year-old body
Each time I look at it I am reminded that I was opened up in order to remove the darkness
I was laid bare in order to be free of the pain
I surrendered in order to find my power
Each time I see my scar
I am reminded that I was lucky
That I had insurance
That I could afford the most extraordinary and loving surgeons and doctors
That I was surrounded by an embarrassment of love and friends and family who bought me soup and presents
And rubbed my feet and made me eggs at 6 in the morning when I was ready to throw up
I am reminded that I mattered
And because of that I recovered
I know that every single person deserves this attention
Every single person
And so my scar has become a permanent tattoo
Calling for inclusion and joy
I know that what truly kept me alive is the women of Congo
Whenever I grew despondent
Or sorry for myself
I would think of the women and girls
Who still dance after 6 million
Of their brothers and sisters have perished from the earth
Who still dance even after the international power elite has forsaken them for 13 years
Who dance now knowing that V-Day's City of Joy will open February 4th
And they will have their place, their fields
Their village to turn their pain to power
And become leaders in their world
How blessed I am to be forever linked with their destiny
I could not die
Simply until they were safe and free and running things
I bow to the women of Congo and thank them for saving my life
Wednesday, November 17, 2010
Today, Laura is tired...and that goes along with lower white blood cell counts, I suppose.
And, today she's tired of being sick -- Who wouldn't be?
Please pray that she'll get some rest and that her spirits will be lifted. And, please continue to pray that a donor will be found quickly. (I STILL wish it had been one of us... Now, I'm hoping it's someone who is just like us -- only better! )
Thanks for loving Laura and for your support for her and the rest of her family.
Tuesday, November 16, 2010
Her numbers had dropped considerably so she had the choice of staying to get 2 units of blood right then or going back today. She chose to stay -- which made for a long day.
Dr. Tongol gave her the go-ahead to have Thanksgiving with the family if her numbers go up.
The best news of the day for her was that he gave her permission to eat grapefruit, oranges, avocados, bananas, and peeled apples!!
He doesn't want her to walk around the block anymore, but did say that as long as she feels up to it, she can ride her bike (inside on the Cyclops --- see previous post.)
Emily has been faithfully fulfilling her role as Nurse Ratchett...and sometimes has help from Mary Celeste, whose other position is that of cooking delicious food. (Mary went down to hang with them last weekend.)
We continue to pray for the perfect donor to show up soon.
"I am so thankful for so much!," Laura said.
You gotta love her attitude!
Wednesday, November 10, 2010
It's called a Cyclops and she can set her bike in it and ride, ride, ride!
Her friends from the 'Y' and others who wanted to be a part of the excitement contributed....
"I love these people!," she said when she sent me the photos...
Thanks to all of you who are helping Laura make the most of an unpleasant situation. What a perfect gift!
Monday, November 8, 2010
Saturday, October 30, 2010
http://www.marrow.org/
Have a happy Saturday.
Wednesday, October 27, 2010
Ain't Nuthin' Simple!
- She will start a totally different kind of chemo on Monday in Albany. That chemo will be for 10 days, once a month until they find a bone marrow donor. I'm not sure if it will be in-patient or out-patient.
- She will need to be in the best possible physical and emotional condition in order to receive the bone marrow. Same is true of the donor.
- This bone marrow transplant is the only way to get rid of the leukemia.
- The donor will need to be at Emory for the transplant and the transplant will take place right after the donation has been made.
- The doctor is very optimistic that they will find a donor.
- A week before the transplant, Laura will receive an intense round of chemo -- which will kill all of her immune system. She will remain in the hospital for 2-3 weeks after the transplant has taken place so that they can monitor her closely.
- Evidently, the period after the transplant can be very unpleasant as the bone marrows get used to each other. The donor marrow is the trouble-maker. (If I'm lucky enough to be the donor, I'm gonna have a "good talkin' to" to my marrow so that it will behave!)
- After the transplant and the 2-3 week period in the hospital, she will probably stay in Atlanta at our house for the month or so afterwards.
- She will be closely monitored for 2-3 years, but that doesn't mean she can't start livin' her regular life!
- Here's something interesting! The (doctor) son of Laura's friend, Ann Pritchard, will be sitting in with her doctor (Dr. Amelia Langston)... just kind of keeping in touch with what's goin' on with her.
- Dr. Langston compared this huge undertaking to mountain climbing... When you start out on your journey, the mountain looks so monstrous and it may seem impossible. But, the way you climb a mountain is one step at a time. And, that's how we're all gonna get through this journey, too.
This afternoon, Laura and the girls are going to go to the mountains with Mrs. Cannon for a few days. See some leaves. Eat some apples. Rest. ♥
Thanks for your continued prayers.
For those of you who might be having trouble posting a comment, please see October 13th entry for help.Tuesday, October 26, 2010
An update from Lisa...
The bad news is that the first round of chemo (Induction) didn't get all the leukemic cells which means she did not go into remission like they hoped. Because the Induction did not work, instead of Consolidation (which they were going to do--that was going to be the five rounds of chemo over the next 18 weeks), they are now going to do a Bone Marrow Transplant.
She has an appointment with Emory tomorrow to discuss the process, meet with her insurance agency, talk with a social worker, and meet the doctor. Tomorrow we will also learn what kind of new chemo they will use before the transplant. The likely scenario is that sometime next week she will start her second round of chemo (which will be a different kind of chemo than the first) and once they find her bone marrow match they will immediatley start the transplant. However, she will have a second round of chemo regardless of how quickly they find her match.
Right now we need to pray for a match and for as little discomfort as possible.
Below are two articles I've found helpful to understanding the process. The first is an article from the NY Times from 2008. I've found it to be pretty informative without going into so much detail that I can't understand a thing. The second is very informative and includes a lot of details.
http://health.nytimes.com/health/guides/surgery/bone-marrow-transplant/overview.html
http://cumc.columbia.edu/dept/medicine/bonemarrow/bmtinfo.html
Thursday, October 21, 2010
While I still have access to a computer...
...here's the latest:
- Laura gets to go home for the weekend!!!!!!!!!!!!!!!!!!!!!!!! (but she'll need to go back on Monday) The rules are that she must wear her mask and a hat and she can't have visitors.
- She'll have five more rounds of chemo (which I think is called the consolidation phase) and each time she receives the chemo, she'll have to be in the hospital. As long as things go well, she can go home in between rounds.
I'm going in just a little while to Emory to have my blood drawn to see if I'm a bone marrow match. Mary has already done that and Robert will do it also. We're hoping that she won't have to have a transplant, but we're also hoping that if she does, one of us will be a match for her.
And, then later today, Clif and I will head to Lake Lanier so I can practice carrying the "My Sister" flag for the 3-Day. After that, hopefully a good night's sleep and then it's a whole lotta walkin' for us over the next few days!!
Thankful for the many blessings of this day. GoFightWin!!!
Wednesday, October 20, 2010
Laura's WBC was 1.3(!) this morning. She also had a bone marrow biopsy...
Looks like she'll have 6 more treatments over the next 18 weeks. Not sure exactly how that looks re: time in the hospital, but all treatments will be in-patient.
I'm waiting for my plane to leave Seattle. Am hoping I'm ready to walk on Friday.
Love y'all!
Tuesday, October 19, 2010
Very quick update:
Laura was hoping that her WBC would be a 1 today, but it was 1.2!!
Other good news:
Here are the cheering stations....
Friday, October 22
8:45 a.m. - 10:45 a.m.
89 Main St.
Buford, GA 30518
12:00 p.m. - 5:00 p.m.
Suwanee Station
Station Center Blvd.
Suwanee, GA 30024
Saturday, October 23
9:15 a.m. - 12:00 p.m.
Oreck Vacuums Store and Plaza
5005 Peachtree Pkwy.
Norcross, GA 30092
11:30 a.m. - 6:00 p.m.
Duluth Monarch School
3057 Main St.
Duluth, GA 30096
Sunday, October 24
7:45 a.m. - 9:30 a.m.
Lowes
4950 Peachtree Industrial Blvd.
Chamblee, GA 30341
10:45 a.m. - 1:30 p.m.
Atlantic Station - along 17th St.
171 17th St.
Atlanta, GA 30363
And closing ceremonies will be at Turner Field at 5:30 p.m.
I hop on a plane way before the crack of dawn and head to Atlanta tomorrow. It will be difficult for me to post much while I'm away from my computer, but tune in next week for updates.
Love you all!!
Monday, October 18, 2010
GoFightWin!, WBC!!
Yesterday, Tobi surprised Laura and Lisa with a DVD player! "Dallas" looks and sounds better on a real tv. ☺ What a nice thing for Tobi to do!
Laura and Lisa are pretty much just sitting around talking, watching old episodes of Dallas, and reading. Laura continues to walk laps around the floor twice daily-in the morning after breakfast and then after supper.
Medically speaking: Her WBC (white blood count) is still low but she's hopeful that things are looking up. Day before yesterday her count was .6. Yesterday and today it's been .8. Although it seems she's a long way from the desired goal of 3, she's been told that once the cells start rebuilding, they multiply fast. GoFightWin!, white blood cells!!
We all continue to be touched by the support and prayers of so many. Thank you all.
For those of you who might be having trouble posting a comment, please see October 13th entry for help.Friday, October 15, 2010
Thursday, October 14, 2010
♪ ♫ Who can take a nothing day, and suddenly make it all seem worthwhile? ♪ ♫
♪ ♫ Well it's you girl, and you should know it ♪ ♫
♪ ♫ With each glance and every little movement you show it ♪ ♫
♪ ♫ Love is all around, no need to waste it ♪ ♫
♪ ♫ You can have a town, why don't you take it ♪ ♫
♪ ♫ You're gonna make it after all ♪ ♫
♪ ♫ You're gonna make it after all ♪ ♫
Wednesday, October 13, 2010
In case you're having trouble...
- After reading the blog entry, click on "Comments" at the bottom of the blog post.
- Enter your comment in the "Leave Your Comment" box.
- Verify the funny looking word in the box below it. (That is there so we won't get lots of spam from computerized programs.)
- Click either "Google acct. ID" or "open ID" (I THINK there are options to create a Google acct. if you don't already have one. *****Remember to save your Google ID and password so you'll have it everytime you need it.)*****
- Click "Publish Your Comment."
Ta-daaaaaaaaaaaaaaaaaaaaaaaaah!
Tuesday, October 12, 2010
Today, Laura was hooked up to the IV all day with 3 different antibiotics and 2 units of blood.
"I continue to be thankful for my family, friends, and the strangers that give blood and platelets everyday for people like me," says Laura.
Sunday, October 10, 2010
All of last week Laura felt pretty good -- mostly stir-crazy and a little bit tired. Today, however, I think she's been more tired and it turns out she has a fever of 101.5 -- which is higher than it should be. (One of the goals for her is to not have a fever above 101 degrees). I was told yesterday that the effects of chemo don't kick in until about the 10th day -- which is what we're approaching.
Friday, October 8, 2010
Thursday, October 7, 2010
Lisa's here!
Mostly, we've just been hangin' out. Last night we watched the very first episode of "Dallas" -- which hooked Lisa. ☺ Today, we had to watch another episode right SMACK kadab (!) in the middle of the day! We're just livin' it up!
Tonight Mrs. Cannon is fixin' dinner for all of us -- Laura's is being delivered to her room and Lisa and I will eat at Mrs. Cannon's. (Thanks, Mrs. Cannnon!)
Laura continues to look good and feel preeeetttty good. Today she had a chest x-ray and a sinus x-ray because she's been coughing. Praying that it's nothing big.
Still can't get over how good she looks and acts.
Please pray for the other families on the cancer floor. There are many people there who are going through all kinds of stuff... Hoping they feel loved and that they'll be healed.
Thank you for your prayers and support for Laura and all of her family.
We love you all.
Tuesday, October 5, 2010
Dr. Jani came by...
Monday, October 4, 2010
Good news!
(Nurse Carolyn, Dr. Tongol, and Miss GFW, herself!)
Sunday, October 3, 2010
Check this card out...
Saturday, October 2, 2010
Friday, October 1, 2010
Look at me and Julie showing you just how huge this poster is...
Thursday, September 30, 2010
Quick update
Laura continues to look good and is in pretty good spirits. She's been eating well and even takes a couple of walks a day around the floor.
Tomorrow is the last day of the first round of chemo. !! She and I are going to celebrate with a "party" -- which includes Fritos, Coke and dip while watching Mary Tyler Moore DVD's.
Please pray that she'll handle next week with minimal discomfort as the chemo kicks in.
Thanks for all you have done and are doing for her. ♥
Wednesday, September 29, 2010
Lots of love comin' in...
The cards she's received have been so sweet. Here's one we thought we'd share with you.
I felt pretty upbeat when I left the hospital tonight and then I saw the most amazing sunset... And, the first word to pop into my head when I saw it was "HOPE."
Monday, September 27, 2010
A glimpse into Laura's day
Sunday, September 26, 2010
A quote for us all...
"I found this quote by Martha Washington in an email my mom sent me a while back. I think it pretty much fits her. 'I am still determined to be cheerful and happy, in whatever situation I may be; for I have also learned from experience that the greater part of our happiness or misery depends upon our dispositions, and not upon our circumstances.'" ♥